Publications

In August 2017 we conducted a pilot study to understand the community's preferences for genetic testing. We surveyed a representative sample of 500 people across Australia and asked them to evaulate different options for genetic testing in areas of cancer, arthritis, Alzheimer's disease, bipolar disorder and multiple sclerosis. Overall, 9 in 10 people said that they would do a genetic test to find out their risk factors for certain diseases.... Read more

History

Incorporating the patient perspective on the value of medicines into health technology assessments is becoming increasingly more important as acknowledged by several prominent HTA agencies. NICE in the UK has employed several measures, including a Citizen’s Council. Canada, particularly in the area of oncology, has a formalized process through which patient input on drug reviews and feedback on recommendations is obtained to ensure patients’ experiences (both good and bad)... Read more

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