Papers

Research Paper: Treatment preferences in people with haemophilia A or caregivers of people with haemophilia A - a discrete choice experiment

CaPPRe has published a peer reviewed research paper on treatment preferences for haemophilia A (PwHA). Using discrete choice experiments (DCEs), this study examined treatment preferences for PwHA and caregivers of children with HA with and without inhibitors in order to better understand how they prioritise and trade‐off different features of treatments during the Haemophilia A treatment decision‐making process. The survey was conducted in Australia, New Zealand, Canada, France, Italy and the United Kingdom.

Research Paper: Myeloma Patient Value Mapping - A Discrete Choice Experiment on Myeloma

CaPPRe has published a peer reviewed research paper on Myeloma Patient Value Mapping. Using discrete choice experiments (DCEs), this study examined myeloma patients’ preferences for treatment in the UK. It set out to define the relative importance of key treatment attributes, characterise the risk-benefit trade-offs in patients’ decision-making, and to analyse the predictive power of basic demographic factors. The findings have important implications for healthcare policy decisions and could be used to guide decisions around the value of new myeloma medicines.

Research Paper: Alignment of preferences in the treatment of multiple myeloma – a discrete choice experiment of patient, carer, physician, and nurse preferences

CaPPRe has published a peer reviewed research paper on alignment of preferences in the treatment of multiple myeloma (MM). Using discrete choice experiments (DCEs), this study examined treatment preferences of people living with MM compared to the treatment preferences of other groups involved in treatment decision making, including carers, as well as physicians and nurses who treat people living with MM in Australia. This study demonstrated that not all people living with MM valued the same treatment attributes equally.

Research Paper: Patient preferences for inflammatory arthritis treatments (IA)

CaPPRe has published a peer-reviewed research paper on patient preferences for inflammatory arthritis treatments (IA). Using discrete choice experiment methodology, the findings showed that most patients consider clinical efficacy, stopping disease progression and the risk of mild-to-moderate side effects as important treatment attributes. The findings are relevant for clinicians when prescribing treatment to patients with IA.

The paper can be accessed here.

Research Paper: Patient and physician preferences for atopic dermatitis injection treatments

CaPPRe has published a peer-reviewed research paper on patient and physician preferences for atopic dermatitis injection treatments in Japan. Using discrete choice experiment methodology, the findings showed that physicians were more likely to value the efficacy of treating rashes, whereas patients preferred add-on treatments, were against self-administering the treatment at home, and were less concerned about cost. The differing treatment preferences of physicians and patients have implications for shared decision making and clinical practice.

Research Paper: Valuing treatment attributes of type 2 diabetes treatments

CaPPRe has published a peer-reveiwed research paper on patient preferences for type 2 diabetes treatments. Using discrete choice experiment methodology, the findings showed that patients considered injection frequency, weight change and nausea to be important features of treatment. Patients were wiling to pay an additional $22.35 AUD/month for the benefits of a once-weekly injection over a twice-daily injection. 

What do people value when choosing a pharmacy?

In August 2017, we conducted a community value mapping study in 500 consumers  who had visited a pharmacy in the last 3 months. Participants were asked to evaluate their preferences for pharmacies offering different locations, opening hours, sevrices and cost. Results showed that there were 3 segments of consumers; those that were service driven, those that were access driven and those that were driven by loyalty. For more infromation about the study and our findings, see our infographic here

Genetic Testing

In August 2017 we conducted a pilot study to understand the community's preferences for genetic testing. We surveyed a representative sample of 500 people across Australia and asked them to evaulate different options for genetic testing in areas of cancer, arthritis, Alzheimer's disease, bipolar disorder and multiple sclerosis. Overall, 9 in 10 people said that they would do a genetic test to find out their risk factors for certain diseases. See our infographic to find out more.