UPDATE: The Patient Voice Initiative Aug 2016


Building on the broad agreement of the key areas that would increase patient and community engagement in the Pharmaceutical Benefits Scheme (PBS) process (as listed here). We’re excited to announce some initiatives for the remainder of 2016 which we are confident will move the discussion forward and allow us to build a stronger case for increased patient involvement in this critical area.

Register now: Satellite meetings in Brisbane and Melbourne – September 2016

There will be two half-day satellite meetings in September 2016 in Brisbane and Melbourne.  These meetings are designed to provide an opportunity for those patients and consumer organisations (patient groups) that were unable to attend the Sydney meeting to learn about the Patient Voice Initiative and get involved.
Brisbane – Wednesday 14 September 2016Register here
Melbourne – Tuesday 20 September 2016Register here
Do feel free to send the dates and registration links on to anyone you think may be interested in attending:

Conference in Canberra – 19 October 2016

To build on the February meeting and synthesise the discussions across the year into specific actions, a one-day conference will be held in Canberra on Wednesday 19 October 2016.  Like the February event, this conference will commence with a dinner on Tuesday 18 October 2016. We have chosen this date as it will allow attendees to also attend the “Disrupting Cancer” Forum run by Rare Cancers Australia on 18 October 2016 at Parliament House.
The focus of the conference will be a framework to formally acknowledge, facilitate and incorporate input from patients and consumers into health decision-making in the Australian PBS system.  The meeting will be open to all stakeholders including patients, health consumer organisations, industry, government and academics.
Travel grants will be available for patients and volunteer health consumer organisations.
Further details and an online registration link will be emailed later this week separately.

Other opportunities to contribute

A number of people signed on to be involved in developing action plans from the ideas generated from the February meeting.  We will be connecting those interested through subgroups to work through ideas using online discussion boards.  The discussion boards will be moderated by an experienced moderator and outcomes will be presented at subsequent meetings.  An email will follow shortly with details of how to contribute to the discussion. Sign up here to be involved.
Thank you for your continuing interest in this important topic.

Patient Voice Initiative Steering Committee